Two years earlier than his demise, Bob Saget quietly provided his help to a household whose 9-year-old daughter is affected by Scleroderma, the identical illness that took the lifetime of his sister in 1994.
Saget was a tireless advocate for these battling the illness, consistently doing charitable occasions and dealing on the Board of the Scleroderma Analysis Basis. On a number of events, he famous how dedicated he was to discovering a treatment after he was personally affected by the illness. The comic’s sister, Homosexual, died at age 47 of the illness years in the past.
In keeping with TMZ, a part of Bob’s work with combating the illness included reaching out to a lady named Sophie Anne, who was identified with the illness when she was 7. Saget reportedly despatched the little lady personalised movies providing her consolation, help and hope that a treatment could possibly be forthcoming.
The outlet notes that Saget understood higher than anybody that Schleroderma impacts not simply the affected person, however the entire household. Because of this, he made himself out there to the lady’s sister and oldsters as properly. He spent greater than half-hour on the telephone with Sophie’s sister in order that she might write a paper on him titled "Bob Saget: My Everyday Hero."
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Bob Saget died unexpectedly at age 65.
(Emma McIntyre/Getty Pictures)
Months in the past, when Saget was performing in North Carolina, he comped Sophie’s dad and mom, Martha and Jeff, tickets to one in every of his reveals. Along with paying for his or her tickets and meals, he invited them backstage after the efficiency.
The "Full House" actor clearly saved in contact. In early December, weeks earlier than his sudden demise, he shared a video on his Instagram that was a repost from the Scleroderma Analysis Basis’s web page that starred Sophie discussing the illness.
"Sophie Anne is one of the reasons I will forever be on the Board of Directors and fight to find the cure to the disease Scleroderma that took my sister‘s life," Saget captioned the post earlier than including the unique textual content from the muse.
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"Sophie Anne and her family are filled with hope, and they inspire us every single day to stay laser-focused on finding a cure. With your support, together we can make a meaningful difference for Sophie Anne, her family, and all those who are touched by this disease," the put up continues.
Actor/comic Bob Saget was a tireless advocate for Scleroderma earlier than his demise.
(Michael Tran/FilmMagic)
Saget served on the board of the San Francisco-based group for 25 years. The muse paid a tribute to the actor on its website: "It is with a very heavy heart that we mourn the loss of our dear friend and Board member, Bob Saget. Bob was a champion for scleroderma patients everywhere dating back to 1991 when he first became involved with the Scleroderma Research Foundation, even before his sister Gay lost her battle with the disease."
Saget was concerned with the muse’s fundraising occasion known as Cool Comedy-Scorching Delicacies, in keeping with its web site. This was previous to his sister being identified with the illness.
Scleroderma means "hard skin." In keeping with well being specialists, it's an autoimmune illness that causes the pores and skin to grow to be infected, which then sparks the physique’s immune system to make an excessive amount of collagen. Well being specialists informed Unique News the illness varies in severity and price of development.
Bob Saget helped a 9-year-old Scleroderma affected person earlier than his demise.
(Paul Archuleta/FilmMagic)
"Scleroderma (aka systemic sclerosis) is a chronic autoimmune condition characterized by progressive thickening, tightening, and hardening of the skin," Dr. Wendy Chi, a rheumatologist for Mount Sinai Well being System in New York Metropolis, informed Unique News in an electronic mail and added, "It typically starts on the hands and face, but can spread to involve extremities and trunk in certain patients."
Unique News' Amy McGorry contributed to this report.
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